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World Health Organization
World Health Organization

DISABILITY ASSESSMENT SCHEDULE World Health Organization Classification, Assessment, and Survey Team (CAS)

Global Programme on Evidence for Health Policy (GPE)

8 2000

8World Health Organization 2000

Publications of the World Health Organization enjoy copyright protection in accordance with the provisions of Protocol 2 of the Universal Copyright Convention. All rights reserved.

An earlier version of this WHODAS II training manual was prepared by Ms. Jayne Lux (WHO, Geneva). Ms. Michele Smith and Dr. JoAnne Epping-Jordan (WHO Geneva) designed and produced the current version of this manual.

The designations employed and the presentation of the material in this publication do not imply the impression of any opinion whatsoever on the part of the Secretariat of the World Health Organization concerning the legal status of any country, territory, city or area or of its authorities, or concerning the delimitation of its frontiers or boundaries.

TABLE OF CONTENTS

I. Overview 4

Manual Goals

What’s Inside

II. Part 1: Introduction 8 Why is Disability Assessment Important?

WHODAS II Background and Rationale

WHODAS II Versions

WHODAS II Translations

III. Part 2: Administering the WHODAS II14 General Information

Standardization

Privacy

Frame of Reference for Answering

Specifications for Self-Administered Versions

Completing the Forms

Specifications for Interviewer-Administered Versions

General Interviewing Instructions

Typographical Conventions

Flashcards

How to Ask the Questions

How to Clarify Unclear Responses

How to Record Data

IV. Part 3: Problems and Solutions37 V. Part 4: Test Yourself40 VI. Part 5: A Final Word44 VII. Annex 1: Glossary 46 VIII. Annex 2: Question by Question 50 Specifications

Manual Goals

The purpose of this guide is to assist you to learn how to administer correctly and effectively the various versions of the WHODAS II.

Throughout the guide, you will find this symbol:

When you see this symbol, it means that there are questions for you to answer, or an activity for you to do. These exercises will help you to learn the material better, so be sure to complete them as you read the guide.

What’s Inside...

Each section of the training manual is designed to assist in learning about one aspect of the WHODAS II. Following is a breakdown of each section and its goals.

Part 1: Introduction

1.1 Why is Disability Assessment Important?

This section provides an overview of the importance of disability

assessment in measuring health status and clinical outcomes.

1.2 WHODAS II Background and Rationale

The history of the development of the WHODAS II is explained, along

with the uses of this instrument.

1.3 WHODAS II Versions

Describes the various versions of the instrument, and appropriate

usage for each. Differences are explained between self-administered,

interviewer-administered, and proxy versions.

1.4 WHODAS II Translations

Lists the languages into which the instrument has been translated, and provides information for those who would like to translate the WHODAS II.

Part 2: Administering the WHODAS II

A. General Information

This section provides instructions applicable to each of the instrument

versions.

2.1 Standardization

Describes the importance and the methods of standardization.

2.2 Privacy

Describes the importance of and methods to ensure privacy for

all participants.

2.3 Frame of Reference for Answering

Reiterates the framework of questions for the WHODAS II,

explaining that questions should be answered in terms of the

degree of difficulty due to health conditions in the past 30 days,

averaging good and bad days, as s/he usually does the activity.

B. Specifications for Self-Administered Versions

Instructions in this section pertain only to those versions of the

WHODAS II that are self-administered (including self-administered

proxy versions).

2.4 Completing the Forms

The self-administered versions of the WHODAS II have specific

coding requirements. This section explains in detail how to

complete the forms for data tracking purposes.

C. Specifications for Interviewer-Administered Versions

Instructions in this section pertain only to those versions of the

WHODAS II that are interviewer-administered (including interviewer-

administered proxy versions).

2.5 General Interviewing Instructions

Reviews interviewing procedures.

2.6 Typographical Conventions

Explains the formatting of the WHODAS II, and differentiates

between text to be read to the respondent and instructions to the

interviewer.

2.7 Flashcards

Explains the appropriate use of the flashcards, including the

flashcards are used with various WHODAS II versions.

2.8 How to Ask the Questions

Describes the standardized method of asking questions of

respondents.

2.9 How to Clarify Unclear Responses

This section describes the standardized methods for clarifying

and probing.

2.10 How to Record Data

This section explains the proper procedures for completing the

interview forms.

Part 3: Problems and Solutions

This section contains answers to problems that may arise during the

administration of the WHODAS II.

Part 4: Test Yourself

This section provides an opportunity to review the material contained

within the training manual and take a short test. Answers are provided, along with the section number that explains the content area so that

missed questions can be found and reviewed in the manual text. Part 5: A Final Word

Recaps the key information in the training manual.

Annex 1: Glossary

This section provides definitions for commonly used terms within the

WHODAS II and the training manual.

Annex 2: Question by Question Specification

This section presents each question of the WHODAS II, and specifies

its goals, along with instructions on how to apply these concepts cross-culturally.

C 1.1 Why is Disability Assessment Important?

C 1.2WHODAS II Background and Rationale

C 1.3WHODAS II Versions

C 1.4Translations

1.1Why is Disability Assessment Important?

As a busy professional, you are already occupied with many day to day tasks. You may wonder if you have the time to learn and use a new disability measure, or even whether it is that important.

Consider these facts:

Medical diagnosis alone fails to predict:

q service needs

q length of hospitalization

q level of care

q outcome of hospitalization

q receipt of disability benefits

q work performance

q social integration

On the other hand, diagnosis + disability can predict:

q health service utilization

q length of hospitalization

q improvement in functioning after hospitalization

q return to work

q work performance

Disability Assessment is useful for health care and policy decisions:

q identifying needs

q matching treatments - interventions

q measuring outcomes and effectiveness

q setting priorities

q resource allocations

Whether you are a clinician, researcher, or administrator, disability assessment can help you meet your goals.

1.2 WHODAS II Background and Rationale

The WHODAS II has been developed to assess the activity limitations and participation restrictions experienced by an individual irrespective of medical diagnosis. Respondents are asked to state the level of difficulty experienced taking into consideration how they usually do the activity, including the use of any assistive devices and/or the help of a person. The domains included in the instrument are:

?Understanding and communicating

?Getting around

care

? Self

?Getting along with people

?Life activities

?Participation in society

This measure remains under development, and final versions are expected to be released in 2001. For the latest information and updates, please visit the WHODAS II web site at http://www.who.int/icidh/whodas.

Development of this instrument is a result of collaborations between the World Health Organization (WHO), National Institute on Mental Health (NIMH), National Institute on Alcohol Abuse and Alcoholism (NIAAA), and National Institute on Drug Abuse (NIDA). This project is known as the WHO/NIH Joint Project on Assessment and Classification of Disablement.

1.3WHODAS II Versions

Several versions of the WHODAS II are available. These include interviewer-administered versions, self-administered versions, and proxy versions. Varying lengths are also offered. All things being equal, we recommend the 36-item, interviewer-administered version because it provides the most complete profiling of respondents. If, due to time constraints and/or study design, it is not feasible to utilise a 36-item interviewer-administered version, other versions are good alternatives.

INTERVIEWER-ADMINISTERED

36 ITEM

This is the recommended version of the WHODAS II. This version provides the most complete assessment of functioning. Scores for six domains of functioning, as well as an overall functioning score, can be calculated.

For each item that is positively endorsed, a follow-up question asks about the number of days (in the past 30 days) the respondent has experienced this difficulty. The day codes version assesses number of days using a five-point ordinal scale, while the days version simply asks the respondent to report the actual number of days the difficulty was present.

12 ITEM

This shorter version is useful for brief assessments of overall functioning.

12+24 SCREENER

This version uses 12 items to screen for problematic domains of functioning. Based on responses to the initial 12 items, respondents are given up to 24 additional questions.

For each item that is positively endorsed, a follow-up question asks about the number of days (in the past 30 days) the respondent has experienced this difficulty. The day codes version assesses number of days using a five-point ordinal scale, while the days version simply asks the respondent to report the actual number of days the difficulty was present.

SELF-ADMINISTERED

36 ITEM

This version assesses all six domains of functioning, and provides detailed information regarding difficulties in these areas. An overall functioning score also can be calculated.

12 ITEM

This shorter, self-administered version can be used when domain-specific information regarding functioning is not required.

PROXY VERSIONS

6 ITEM SELF-ADMINSTERED PROXY

The 6-item, self-administered, proxy version allows someone other than the primary respondent to provide their evaluation of the primary respondent’s difficulties with functioning. This version can be used when the primary respondent cannot complete a self-evaluation, or to allow for comparisons of perceptions of difficulty. This version can be completed by family members, friends, or anyone with frequent contact with the primary respondent, such as caregivers.

6 ITEM SELF-ADMINISTERED CLINICIAN

This version allows the primary-respondent’s clinician to provide input regarding the primary respondent’s level of functioning.

36 ITEM SELF-ADMINISTERED PROXY

The 36-item, self-administered, proxy version allows someone other than the primary respondent to provide their evaluation of the primary respondent’s difficulties with functioning. The 36-items are virtually identical to the 36-item primary respondent versions. Scores can be calculated for each of the six domains of functioning, as well as for overall functioning.

36 ITEM INTERVIEWER-ADMINISTERED PROXY

The 36-item, interviewer-administered, proxy version allows someone other than the primary respondent to provide their evaluation of the primary respondent’s difficulties with functioning. The 36-items are virtually identical to the 36-item primary respondent versions. Scores can be calculated for each of the six domains of functioning, as well as for overall functioning.

1.4 TRANSLATIONS

Currently, the WHODAS II is available in the following languages:

Arabic Dutch English

French German Greek

Hindi Italian Kannada

Mandarin Romanian Russian

Spanish Tamil Turkish

Yoruba

If you would like to utilise one of our translations, or create another translation of the WHODAS II, you must first receive written permission. To request permission, send an email to whodas@who.int.

A. General Information

Information in this section pertains to all of the WHODAS II versions.

{tc \l1 "Components}

C 2.1Standardization

C 2.2Privacy

C 2.3Frame of Reference for Answering

2.1 Standardization

Standardization means that you should conduct the WHODAS II interview the same way with each participant. Why? Standardization helps to ensure that differences in participants’ responses are not due to differences in how the interview is conducted. For example, if an interviewer administers the WHODAS II to some participants in a group situation, but to others alone, then it is possible that differences in responses are due solely to this different interview format. The same principle is true between interviewers: if one interviewer is very friendly to participants, while another is distant, then participants may give different types of responses.

Clear training in standardized procedures helps to prevent these possibilities. Many guidelines for standardized administration of the WHODAS II are given in this manual. Be sure to read and follow them carefully.

The key to success is ensuring that all versions of the WHODAS II are administered the same way every time. This is the essence of standardization.

2.2 Privacy

It is essential that each participant is provided privacy to ensure a high comfort level, and in turn, the most accurate responses. If the WHODAS II is administered in a waiting room, for example, ensure that there is enough space between participants to avoid participant’s responses being seen by another respondent. In the instances where the WHODAS II is administered through interviews, conduct the interview in a closed room where responses cannot be overheard by anyone else.

2.3 Frame of Reference for Answering

For all WHODAS II versions, respondents should answer questions with the following frames of reference in mind. Interviewers should remind respondents as needed about these frames of reference.

1) Degree of difficulty

During the interview, respondents are asked to answer questions about the degree of difficulty that they have doing different activities.For the WHODAS II, having difficulty with an activity means:

q

Increased effort q

Discomfort or pain q

Slowness q

Changes in the way the person does the activity

2) … due to health conditions

Respondents are instructed to answer about difficulties due to any health condition.

Health Condition means:

?Diseases, illnesses or other health problems

? Injuries

?Mental or emotional problems

?Problems with alcohol

?Problems with drugs

Interviewers should feel free to liberally remind respondents that they are to answer questions while thinking about difficulty due to health conditions, and not to consider other causes of difficulty with activities.

Example:

Item D3.1: How much difficulty did you have in washing your whole body?

None Mild Moderate Severe

Extreme /Cannot Do

12345

If a respondent has difficulty with bathing because it is cold, not due to a health condition , the item would be rated “1” for none.

3) … in the past 30 days

Research shows that recall abilities are most accurate for the period of one month. As a result, the past 30 days has been selected as the timeframe for the WHODAS II.

4) … averaging good and bad days

Some respondents will experience variability in the degree of difficulty that they experience over 30 days. In these cases, respondents should be instructed to give a rating that averages good days and bad days.

5) … as s/he usually does the activity

Respondents should rate the difficulty experienced taking into consideration how they usually do the activity. If assistive devices and/or the help of a person (personal assistance) are normally available, respondents should answer keeping this help in mind.

Example:

Item D3.1: How much difficulty did you have in washing your whole body?

None Mild Moderate Severe

Extreme /Cannot Do

12345

A respondent with a spinal cord injury has a personal assistant who helps daily with bathing. With the assistant’s help, the respondent experiences no difficulty with washing his whole body. In this case, the item would be rated “1” for none.

6) Items not experienced in the past 30 days are not rated

The WHODAS II seeks to determine the amount of difficulty encountered in activities that a person actually does as opposed to activities that s/he would like If a respondent is prevented from doing an activity due to a health condition, the item should be rated “5” for extreme/cannot do.

Example:

Item D2.5: How much difficulty did you have in walking a long distance such as one kilometer?

None Mild Moderate Severe Extreme /Cannot

Do

B. Self-Administered Version

Specifications

This section pertains only to the self-administered versions of the WHODAS II, and contains instructions specific to these versions, including self-administered proxy versions.{

tc \l1 "Components }C 2.4Completing the Forms

2.4 Completing the Forms

A section entitled “For Office Use Only” is located in the upper right corner of each of the self-administered versions of the WHODAS II. This section of the training manual describes each portion of that area, and how to correctly complete the information. This section should be completed before the participant completes the questionnaire.

The first line looks like this: _ _ _ - _ _ _ - ____

Centre# Subject# - Time#

The Centre # is the three-digit number which was assigned to your research centre upon agreement of collaboration. If you have forgotten your centre number, it may be found on the WHODAS II web site, located at http://www.who.int/icidh/whodas . Click on the “Field Trials Centres” link, and your centre number will be listed next to your centre name.

The Subject # is the unique three-digit number which you should assign to that particular participant. It is imperative that the number assigned to the respondent is recorded exactly the same way for all interviews, to ensure reliability.Time

Time refers to the time point of the interview, whether it is the first, second, or nth time the respondent has completed the measure.

Date

Please respond using the European standard of writing the date, which is Day/Month/Year, and filling in blanks with zeros. For example, February 4, 2000 would be written as 04/02/00, not 02/04/00.

Pop

Pop stands for population, and refers to the primary category of the respondent. Gen= General Population Drg = Drug-related Problem Alc = Alcohol-related Problem Mnh= Mental or Emotional

Problem

Phys= Physical Problem Other= Other Category Dwelling

Dwelling means the type of residence in which the respondent resides. Independent= respondent lives on his/her own, with family, or friends in the community.

Assisted= respondent lives in the community but receives regular assistance with at least some daily activities (e.g. shopping, bathing, meal preparation). This may include physical help, verbal reminders or cues, supervision, or psychosocial assistance. Assistance may be provided from a family member, friend, or professional carer.

Hospitalized= respondent resides in a 24-hour supervised setting (e.g. nursing

C. Interviewer-Administered Version

Specifications

This section pertains only to the interviewer-administered versions, and contains information specific to these versions, including interviewer-administered proxy versions.

2.5 General Interviewing Instructions

As you prepare to administer the WHODAS II, it is useful to review some general points about interviewing.

General Interviewing Tips

Keep the following points in mind:

q You should be serious, pleasant, and self-confident. Nervousness can make the respondent feel uneasy.

q You should speak slowly and clearly to set the tone for the interview.

q You should appear interested in the research.

q You should be aware that different respondents require different amounts of information about the study, and adjust your introductions accordingly.

Make a Good Introduction

A good introduction to the WHODAS II interview is essential. It communicates the goals of the interview and sets the tone of the interaction. Be sure to include the following points in your introduction:

q Your name and professional affiliation.

q You are a professional interviewer/clinician.

q You represent a legitimate and reputable organization.

q The questionnaire is for gathering information for important, worthwhile research.

q

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